Digital data presents researchers and ethics committees with familiar and novel ethical issues. Accepted strategies for managing issues such as privacy and confidentiality, and informed consent, need rethinking when digital data is being used.
Through the Carlton Connect Initiatives Fund (CCIF), the Centre for Epidemiology and Biostatistics at the Melbourne School of Population and Global Health developed the Guidelines for the Ethical Use of Digital Data in Human Research. Led by Associate Professor Jodie McVernon of the Centre’s Modelling and Simulation Unit, the publication discusses key features of digital data. The guidelines were developed by a group of researchers using digital addresses some of the key issues that for researchers and human research ethics committees.